Mats Steen had muscular dystrophy and died very young. But a touching new documentary has used animation and his own posts to reveal the fulfilling gaming life he led in World of Warcraft – right down to his first kiss The night after their son Mats died aged just 25, Trude and Robert Steen sat on the sofa in their living room in Oslo with their daughter Mia. They couldn’t sleep. “Everything was a blur,” remembers Trude of that day 10 years ago. “Then Robert said, ‘Maybe we should reach out to Mats’ friends in World of Warcraft.’” Mats was born with Duchenne muscular dystrophy, a progressive condition that causes the muscles to weaken gradually. He was diagnosed aged four and started using a wheelchair at 10. By the end of his life, Mats could only move his fingers, and required a tube to clear his throat every 15 minutes. As he became increasingly disabled, he spent more time gaming: 20,000 hours in his last decade (about the same as if it were a full-time job). Continue reading...

Using World of Warcraft-style animation, this documentary tells the story of Mats Steen, a boy with muscular dystrophy whose online popularity was only revealed after his death It’s probably just an accident of scheduling, but this deeply affecting documentary is arriving just when there’s a debate raging at the school gates about children’s use of smartphones and social media. So while it’s undoubtedly troubling how tech platforms set out to addict and exploit young minds, The Remarkable Life of Ibelin provides a fascinating counterargument about how online gaming at least can be a lifeline for some individuals who find themselves isolated in the real world, or IRL as the kids like to say. Born in 1989, Mats Steen started out like many other Norwegian children of his generation: energetic, sweet-natured, unusually pale. However, his parents Robert and Trude soon discovered that he had Duchenne muscular dystrophy, a genetic condition that eroded his ability to move and breathe and which would eventually kill him at the age of 25. By that point in 2014, Robert, Trude and Mats’ sister Mia knew that Mats spent hours of his life online playing World of Warcraft using special equipment to accommodate his disability and had been publishing a blog about his life. Continue reading...